@文章{信息:doi/10.2196/39199，作者=“Ahmed, Mona和Mar{\'i}n, Mayca和How, Daniella和Judica, Elda和Tropea, Peppino和Bentlage, Ellen和J Ferreira, Joaquim和Bou{\c{c}}a- machado, Raquel和Brach, Michael”，标题=“老年痴呆症或帕金森病患者个性化综合护理平台(PROCare4Life)开发中的最终用户和其他利益相关者的需求和要求:“混合方法研究”，期刊=“JMIR Form Res”，年=“2022”，月=“11”，日=“30”，卷=“6”，号=“11”，页=“e39199”，关键词=“神经退行性;帕金森病;老年痴呆症;慢性疾病;卫生保健技术;综合护理;信息和通信技术;信息通信技术;以用户为中心的设计; mobile phone", abstract="Background: With what has been known as the ``triple-win effect'', introducing information and communication technologies (ICTs) in the health care of neurodegenerative diseases is beneficial in delaying the need for institutional care, reducing the associated health care costs, reducing the caregiving burden, and improving individuals' quality of life. Nevertheless, the mismatch between the users' expectations and their actual needs remains one of the main challenges that can reduce the usability of technology solutions. Therefore, the European project Personalized Integrated Care Promoting Quality of Life for Older People (PROCare4Life), which aimed to develop an ICT-based platform for all parties involved in the health care of neurodegenerative diseases, adopted a user-centered design approach, where all users are involved from the inception and throughout the platform development and implementation to integrate their needs and requirements in the proposed platform. Objective: This paper presents the results of a study on the needs and requirements of the potential end users (older people with neurodegenerative diseases, caregivers, and health care professionals) and other key stakeholders in the development of the PROCare4Life platform. Methods: A mixed qualitative and quantitative study design was used, including 2 web-based surveys, 40 interviews, and 4 workshops. The study was conducted between April and September 2020 in 5 European countries: Germany, Italy, Portugal, Romania, and Spain. Both data types were analyzed separately and then merged and interpreted, with greater priority placed on qualitative research. Results: A total of 217 participants were recruited; 157 (72.4{\%}) of them completed the web-based surveys (n=85, 54.1{\%} patients and n=72, 45.9{\%} caregivers), and 60 (27.6{\%}) individuals participated in the qualitative research (20/60, 33{\%} health care professionals; 5/60, 8{\%} patients; 5/60, 8{\%} caregivers; and 30/60, 50{\%} key stakeholders). We identified 3 main themes (T): (T1) experiences associated with illness, (T2) thoughts about the platform technology, and (T3) desired properties. Alerts for adverse events, communication tools, reminders, and monitoring are constantly needed functionalities, whereas ease of use, personalization, and user-friendliness are foreseen as necessary features. Conclusions: This paper identified the key personal, social, and health factors that influence the daily lives of the potential end users and reflected on their needs and expectations regarding the design of the proposed PROCare4Life platform. The collected data were useful for the development of the PROCare4Life platform. Although the combination and collection of features for diverse user groups are typical for integrated care platforms, it results in exponential complexity for designers, developers, and users. Contradicting opinions and several concerns in this study demonstrate that an ICT-integrated care platform should not promise too much for too many. Instead, selection, focus, and, sometimes, restriction to essentials are necessary. Users and other stakeholders should be involved in these decisions. International Registered Report Identifier (IRRID): RR2-10.2196/22463 ", issn="2561-326X", doi="10.2196/39199", url="https://formative.www.mybigtv.com/2022/11/e39199", url="https://doi.org/10.2196/39199", url="http://www.ncbi.nlm.nih.gov/pubmed/36449340" }