@Article{信息:doi 10.2196 / /移动医疗。7229，作者=“蔡，Ran A和Beste，多米尼克和卓别林，Hema和Varakliotis，苏格拉底和Suffield, Linda和Josephs, Francesca和Sen, Debajit和Wedderburn, Lucy R和Ioannou, Yiannakis和Hailes, Stephen和Eleftheriou, Despina”，标题=“JIApp的开发和评估:智能手机应用系统改善青少年特发性关节炎自我管理的可接受性和可用性”，期刊=“JMIR Mhealth Uhealth”，年=“2017”，月=“8”，日=“15”，卷=“5”，号=“8”，页=“e121”，关键词=“青少年特发性关节炎;自我管理;青少年;年轻的成年人;移动应用程序;定性研究;背景:青少年特发性关节炎(JIA)的发作以关节疼痛和肿胀为特征，常伴有疲劳、负面情绪和活动减少。为了尽量减少JIA对年轻人身体和心理发展和福祉的影响，必须定期监测疾病活动和副作用，并支持自我管理，如遵守治疗计划和参与一般健康促进行为。 Smartphone technology has the potential to engage YP with their health care through convenient self-monitoring and easy access to information. In addition, having a more accurate summary of self-reported fluctuations in symptoms, behaviors, and psychosocial problems can help both YP and health care professionals (HCPs) better understand the patient's condition, identify barriers to self-management, and assess treatment effectiveness and additional health care needs. No comprehensive smartphone app has yet been developed in collaboration with YP with JIA, their parents, and HCPs involved in their care. Objectives: The objective of this study was to design, develop, and evaluate the acceptability and usability of JIApp, a self-management smartphone app system for YP with JIA and HCPs. Methods: We used a qualitative, user-centered design approach involving YP, parents, and HCPs from the rheumatology team. The study was conducted in three phases: (1) phase I focused on developing consensus on the features, content, and design of the app; (2) phase II was used for further refining and evaluating the app prototype; and (3) phase III focused on usability testing of the app. The interview transcripts were analyzed using qualitative content analysis. Results: A total of 29 YP (aged 10-23, median age 17) with JIA, 7 parents, and 21 HCPs were interviewed. Major themes identified as the ones that helped inform app development in phase I were: (1) remote monitoring of symptoms, well-being, and activities; (2) treatment adherence; and (3) education and support. During phase II, three more themes emerged that informed further refinement of the app prototype. These included (4) adapting a reward system to motivate end users for using the app; (5) design of the app interface; and (6) clinical practice integration. The usability testing during phase III demonstrated high rates of overall satisfaction and further affirmed the content validity of the app. Conclusions: We present the development and evaluation of a smartphone app to encourage self-management and engagement with health care for YP with JIA. The app was found to have high levels of acceptability and usability among YP and HCPs and has the potential to improve health care and outcomes for this age group. Future feasibility testing in a prospective study will firmly establish the reliability, efficacy, and cost-effectiveness of such an app intervention for patients with arthritis. ", issn="2291-5222", doi="10.2196/mhealth.7229", url="http://mhealth.www.mybigtv.com/2017/8/e121/", url="https://doi.org/10.2196/mhealth.7229", url="http://www.ncbi.nlm.nih.gov/pubmed/28811270" }