“信任的问题”和“信仰的飞跃”——研究参与者对智能家居研究中的同意、隐卡塔尔世界杯8强波胆分析私和信任的看法定性研究%A Kennedy,Mari-Rose %A Huxtable,Richard %A Birchley,Giles %A Ives,Jonathan %A Craddock,Ian %+布里斯托尔大学布里斯托尔医学院医学伦理中心，布里斯托尔沃特利路39号，布里斯托尔，BS8 2PS，英国，44 117 3331 4512,mari-rose.kennedy@bristol.ac.uk %K智能家居%K辅助技术%K研究伦理%K知情同意%K隐私%K匿名化%K信任%D 2021 %7 26.11.2021 %9原始论文%J JMIR Mhealth Uhealth %G英文%X背景:无处不在的智能技术有可能以多种方式帮助人类，包括健康和社会护理。COVID-19明显加快了向远程提供许多卫生服务的进程。在开发技术的过程中涉及到各种各样的利益相关者。在利益相关者是研究参与者的情况下，这会带来实际和道德上的挑战，特别是如果研究是在人们的家中进行的。研究人员必须遵守与参与者利益相关的初步道德义务，尊重他们的自主权和隐私。目的:本研究旨在探讨SPHERE(住宅环境中医疗保健传感器平台)项目参与者在同意、隐私、匿名化和数据共享方面的伦理考虑，该项目旨在开发用于监测家庭健康行为的智能技术。参与者在这个不同寻常的实验中获得的独特见解，为未来如何正确处理类似智能家居研究的知情同意提供了有价值的视角。方法:采用半结构化的定性访谈法，对从北京市外语系抽取的7户家庭(16名个体)进行访谈。 Purposive sampling was used to invite participants from a range of household types and ages. Interviews were conducted in participants’ homes or on-site at the University of Bristol. Interviews were digitally recorded, transcribed verbatim, and analyzed using an inductive thematic approach. Results: Four themes were identified—motivation for participating; transparency, understanding, and consent; privacy, anonymity, and data use; and trust in research. Motivations to participate in SPHERE stemmed from an altruistic desire to support research directed toward the public good. Participants were satisfied with the consent process despite reporting some difficulties—recalling and understanding the information received, the timing and amount of information provision, and sometimes finding the information to be abstract. Participants were satisfied that privacy was assured and judged that the goals of the research compensated for threats to privacy. Participants trusted SPHERE. The factors that were relevant to developing and maintaining this trust were the trustworthiness of the research team, the provision of necessary information, participants’ control over their participation, and positive prior experiences of research involvement. Conclusions: This study offers valuable insights into the perspectives of participants in smart home research on important ethical considerations around consent and privacy. The findings may have practical implications for future research regarding the types of information researchers should convey, the extent to which anonymity can be assured, and the long-term duty of care owed to the participants who place trust in researchers not only on the basis of this information but also because of their institutional affiliation. This study highlights important ethical implications. Although autonomy matters, trust appears to matter the most. Therefore, researchers should be alert to the need to foster and maintain trust, particularly as failing to do so might have deleterious effects on future research. %M 34842551 %R 10.2196/25227 %U https://mhealth.www.mybigtv.com/2021/11/e25227 %U https://doi.org/10.2196/25227 %U http://www.ncbi.nlm.nih.gov/pubmed/34842551