@Article{信息:doi 10.2196 / / jmir。4190，作者=“Berry, Donna L和Blonquist, Traci M和Patel, Rupa A和Halpenny, Barbara和McReynolds, Justin”，标题=“暴露于以患者为中心的管理癌症症状和生活质量问题的网络干预:对症状窘迫的影响”，期刊=“J医学互联网研究”，年=“2015”，月=“Jun”，日=“03”，卷=“17”，数=“6”，页=“e136”，关键词=“以患者为中心的技术;癌症;症状;生活质量;电子健康;背景:有效的电子健康干预措施可以使大量患者受益，其内容旨在支持慢性和急性疾病的自我护理和管理。尽管在大多数电子卫生干预措施中很容易记录使用统计数据，但在试验中很少报告使用或接触情况，更不用说研究与有效性的关系了。目的:该研究的目的是评估一个完全自动化的基于网络的程序，电子自我报告评估-癌症(ESRA-C)的使用，以及干预的交付和全面使用如何影响癌症症状窘迫。方法:两个癌症中心的患者使用ESRA-C自我报告治疗期间的症状和生活质量(SxQOL)问题。 Participants were randomized to ESRA-C assessment only (control) or the ESRA-C intervention delivered via the Internet to patients' homes or to a tablet at the clinic. The intervention enabled participants to self-monitor SxQOL and receive self-care education and customized coaching on how to report concerns to clinicians. Overall and voluntary intervention use were defined as having ≥2 exposures, and one non-prompted exposure to the intervention, respectively. Factors associated with intervention use were explored with Fisher's exact test. Propensity score matching was used to select a sample of control participants similar to intervention participants who used the intervention. Analysis of covariance (ANCOVA) was used to compare change in Symptom Distress Scale (SDS-15) scores from pre-treatment to end-of-study by groups in the matched sample. Results: Radiation oncology participants used the intervention, overall and voluntarily, more than medical oncology and transplant participants. Participants who were working and had more than a high school education voluntarily used the intervention more. The SDS-15 score was reduced by an estimated 1.53 points (P=.01) in the intervention group users compared to the matched control group. Conclusions: The intended effects of a Web-based, patient-centered intervention on cancer symptom distress were modified by intervention use frequency. Clinical and personal demographics influenced voluntary use. Trial Registration: Clinicaltrials.gov NCT00852852; http://clinicaltrials.gov/ct2/show/NCT00852852 (Archived by WebCite at http://www.webcitation.org/6YwAfwWl7). ", issn="1438-8871", doi="10.2196/jmir.4190", url="//www.mybigtv.com/2015/6/e136/", url="https://doi.org/10.2196/jmir.4190", url="http://www.ncbi.nlm.nih.gov/pubmed/26041682" }