@Article{信息:doi 10.2196 / / jmir。6336,作者="Mueller, Julia and Jay, Caroline and Harper, Simon and Todd, Chris",标题="基于网络的健康信息在肺癌诊断前寻求帮助行为中的作用:一项混合方法研究",期刊="J Med Internet Res",年="2017",月="Jun",日="08",卷="19",数="6",页数="e189",关键词="寻求帮助;在线健康信息;寻求保健信息;肺癌;背景:肺癌延迟诊断会导致生存机会降低,患者往往要等几个月才出现症状。从第一次症状识别到诊断之间的时间被理论上分为三个区间:症状评估、寻求帮助和诊断区间(这里:“诊断路径”)。需要采取干预措施以减少肺癌的延误诊断。网络已经成为一个重要的健康信息源,并可能在这一诊断途径中发挥作用。目的:我们的总体目标是初步了解网络信息是否在肺癌的诊断途径中发挥作用,以评估是否有可能利用这一信息源来减少诊断延迟。 Methods: Patients diagnosed with lung cancer in the 6 months before study entry completed a survey about whether (and how, if yes) they had used the Web to appraise their condition prior to diagnosis. Based on survey responses, we purposively sampled patients and their next-of-kin for semistructured interviews (24 interviews; 33 participants). Interview data were analyzed qualitatively using Framework Analysis in the context of the pathway to diagnosis model. Results: A total of 113 patients completed the survey (age: mean 67.0, SD 8.8 years). In all, 20.4{\%} (23/113) reported they or next-of-kin had researched their condition online before the diagnosis. The majority of searches (20/23, 87.0{\%}) were conducted by or with the help of next-of-kin. Interview results suggest that patients and next-of-kin perceived an impact of the information found online on all three intervals in the time to diagnosis. In the appraisal interval, participants used online information to evaluate symptoms and possible causes. In the help-seeking interval, the Web was used to inform the decision of whether to present to health services. In the diagnostic interval, it was used to evaluate health care professionals' advice, to support requests for further investigation of symptoms, and to understand medical jargon. Within this interval, we identified two distinct subintervals (before/after relevant diagnostic tests were initiated), in which the Web reportedly played different roles. Conclusions: Because only 20.4{\%} of the sample reported prediagnosis Web searches, it seems the role of the Web before diagnosis of lung cancer is at present still limited, but this proportion is likely to increase in the future, when barriers such as unfamiliarity with technology and unwillingness to be informed about one's own health are likely to decrease. Participants' perceptions suggest that the Web can have an impact on all three intervals in the pathway to diagnosis. Thus, the Web may hold the potential to reduce delays in the diagnostic process, and this should be explored in future research and interventions. Our results also suggest a division of the diagnostic interval into two subintervals may be useful. ", issn="1438-8871", doi="10.2196/jmir.6336", url="//www.mybigtv.com/2017/6/e189/", url="https://doi.org/10.2196/jmir.6336", url="http://www.ncbi.nlm.nih.gov/pubmed/28596146" }
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