@Article{信息:doi 10.2196 / / jmir。7760，作者=“南丁格尔，露丝和霍尔，安德鲁和盖尔德，卡罗尔和弗里德，西莫尼和布伦南，艾琳和Swallow，维罗妮卡”，标题=“为患有长期慢性病的儿童和年轻人定制的，基于家庭的数字护理管理应用程序的理想组件:定性探索”，期刊=“J医学互联网Res”，年=“2017”，月=“七月”，日=“04”，卷=“19”，数=“7”，页=“e235”，关键词=“儿童;青少年;长期条件;慢性疾病;自我管理;自理;移动应用;应用程序;背景:手机和平板设备上的移动应用程序广泛应用于患有慢性肾病(CKD)等长期健康问题的0-18岁儿童和年轻人，以及他们的健康同龄人用于社交网络或游戏。 They are also poised to become a major source of health guidance. However, app development processes that are coproduced, rigorously developed, and evaluated to provide tailored, condition-specific, practical advice on day-to-day care management are seldom systematic or sufficiently described to enable replication. Furthermore, attempts to extrapolate to the real world are hampered by a poor understanding of the effects of key elements of app components. Therefore, effective and cost-effective novel, digital apps that will effectively and safely support care management are critical and timely. To inform development of such an app for children with CKD, a user requirements-gathering exercise was first needed. Objective: To explore the views of children with CKD, their parents, and health care professionals to inform future development of a child-focused, care-management app. Methods: Using age- and developmentally appropriate methods, we interviewed 36 participants: 5-10-year-olds (n=6), 11-14-year-olds (n=6), 15-18-year-olds (n=5), mothers (n=10), fathers (n=2), and health care professionals (n=7). Data were analyzed using Framework Analysis and behavior change theories. Results: Of the 27 interviews, 19 (70{\%}) interviews were individual and 8 (30{\%}) were joint---5 out of 8 (63{\%}) joint interviews were with a child or young person and their parent, 1 out of 8 (13{\%}) were with a child and both parents, and 2 out of 8 (25{\%}) were with 2 professionals. Three key themes emerged to inform development of a software requirement specification for a future home-based, digital care-management app intervention: (1) Gaps in current online information and support, (2) Difficulties experienced by children with a long-term condition, and (3) Suggestions for a digital care-management app. Reported gaps included the fact that current online information is not usually appropriate for children as it is ``dry'' and ``boring,'' could be ``scary,'' and was either hard to understand or not relevant to individuals' circumstances. For children, searching online was much less accessible than using a professional-endorsed mobile app. Children also reported difficulty explaining their condition to others, maintaining treatment adherence, coping with feeling isolated, and with trying to live a ``normal'' life. There was recognition that a developmentally appropriate, CKD-specific app could support the process of explaining the condition to healthy peers, reducing isolation, adhering to care-management plans, and living a ``normal'' life. Participants recommended a range of media and content to include in a tailored, interactive, age- and developmentally appropriate app. For example, the user would be able to enter their age and diagnosis so that only age-appropriate and condition-specific content is displayed. Conclusions: Future development of a digital app that meets the identified information and support needs and preferences of children with CKD will maximize its utility, thereby augmenting CKD caregiving and optimizing outcomes. ", issn="1438-8871", doi="10.2196/jmir.7760", url="//www.mybigtv.com/2017/7/e235/", url="https://doi.org/10.2196/jmir.7760", url="http://www.ncbi.nlm.nih.gov/pubmed/28676470" }