@Article{info:doi/10.2196/18556,作者=“Rees-Punia, Erika和Patel, Alpa V和Beckwitt, Asher和Leach, Corinne R和Gapstur, Susan M和Smith, Tenbroeck G”,标题=“研究参与者对使用电子门户网站参与和数据收集的看法:来自大型流行病学队列的焦点小组结果”,期刊=“J Med Internet Res”,年=“2020”,月=“10”,日=“1”,卷=“22”,数=“10”,页=“e18556”,关键词=“焦点小组”;卫生信息技术;背景:流行病学队列研究已经开始利用电子研究参与者门户来促进数据收集,整合可穿戴技术,降低成本,并吸引参与者。然而,研究参与者对门户使用的可接受性知之甚少。目的:本研究的目的是在癌症预防研究-3 (CPS-3)的参与者样本中进行焦点小组,以更好地了解他们对研究门户的偏好和关注。方法:CPS-3参与者按性别、人种、年龄、癌症状况进行分层,随机入选。焦点小组使用探索性案例设计和半结构化指南来促进讨论。使用持续比较技术,转录本被分配代码来识别主题。结果:参与者(31/59,52{\%}女性;(52/ 59,88{\%}白人/非拉丁裔)倾向于使用研究参与者门户网站进行调查,与研究人员沟通,并上传数据。 Most participants indicated that a portal would be beneficial and convenient but expressed concerns over data safety. Participants stressed the importance of an easy-to-use and trustworthy portal that is compatible with mobile devices. Conclusions: In addition to being beneficial to researchers, portals may also benefit participants as long as the portals are secure and simple. Participants believe that portals can provide convenient ways to report data and remain connected to the study. ", issn="1438-8871", doi="10.2196/18556", url="//www.mybigtv.com/2020/10/e18556", url="https://doi.org/10.2196/18556", url="http://www.ncbi.nlm.nih.gov/pubmed/33001033" }
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