TY - JOUR AU - Shoebotham, Amie AU - Coulson, Neil S PY - 2016 DA - 2016/05/09 TI -使用在线支持小组治疗子宫内膜异位症的疗效JO - J Med Internet Res SP - e109 VL - 18 IS - 5kw -子宫内膜异位症，社会网络，社会支持，定性研究AB -背景:互联网为子宫内膜异位症女性提供了在线寻求支持的新机会。在线支持小组可能会提供一系列对这些妇女有益的治疗效果。目的:研究使用子宫内膜异位症在线支持小组的妇女所感受到的治疗效果。方法:女性69例，年龄19 ~ 50岁，平均34.2岁;65.2%(45/69)的英国人，21.7%(15/69)的美国人参加了一项基于网络的访谈，探讨在线支持小组的使用情况。参与者使用在线支持小组的平均时间为2年零4个月(范围从1个月到14年零9个月)。采用归纳主题性分析对调查结果进行分析。结果:分析揭示了与在线支持小组使用相关的4种治疗能力:(1)“连接”，即通过连接相互支持、交换建议并试图克服孤独感的能力;(2)“探索”，即寻找信息、学习和巩固知识的能力;(3)“叙述”，即分享自己经历的能力，以及阅读他人经历的能力; and (4) “self-presentation,” that is, the ability to manage how they present themselves online. The associated outcomes of use were predominantly positive, such as reassurance and improved coping. However, a number of negative aspects were revealed including the following: concerns about the accuracy of information, arguments between members, overreliance on the group, becoming upset by negative experiences or good news items, and confidentiality of personal information. Conclusions: Our findings support the previously proposed SCENA (Self-presentation, Connection, Exploration, Narration, and Adaptation) model and reveal a range of positive aspects that may benefit members, particularly in relation to reassurance and coping. However, negative aspects need to be addressed to maximize the potential benefit of support groups. Some of these can be addressed relatively easily through making privacy policies clearer, including health professionals to moderate content, and structuring forums to encourage the sharing of positive stories. SN - 1438-8871 UR - //www.mybigtv.com/2016/5/e109/ UR - https://doi.org/10.2196/jmir.5548 UR - http://www.ncbi.nlm.nih.gov/pubmed/27160641 DO - 10.2196/jmir.5548 ID - info:doi/10.2196/jmir.5548 ER -